A growing number of people are experiencing cancer not as a life-limiting disease, but as a life-changing and long-term condition.
The Macmillan HORIZONS programme sets out to provide the robust and comprehensive data to improve our understanding of cancer and its treatment on everyday life.
HORIZONS will provide data that patient, clinical, and policy communities need to transform care for people living with and beyond cancer.
Methods
- The Macmillan HORIZONS programme is a prospective cohort study of adults (>16 years) of adults treated for non-metastatic cancer.
- Around 3,000 patients are being recruited from over 70 NHS trusts and health boards across the UK.
- Recruitment spanned between September 2016 and March 2019.
- Patients are recruited before the start of primary cancer treatment and will be followed over time to examine a range of clinical and psychosocial outcomes and experiences.
- Data are being collected using questionnaires and Case Report Forms.
- A nested qualitative study is also planned.
Our initial cohorts
- Young women (<50 years) with Breast cancer
- Men and women with Diffuse large B cell Non-Hodgkin Lymphoma (NHL)
- Women with a Gynaecological cancer (cervical, endometrial, ovarian or vulval cancer)
Research Themes
HORIZONS is structured around the following two linked research themes:
