Experiences and outcomes of cancer treatment and care are changing. A growing number of people are experiencing cancer not as a life-limiting disease, but as a life-changing and long term condition. There is a growing imperative to understand the changing landscape of cancer and its consequences: as we do so, we will be better able to inform the design and delivery of cost effective interventions that make possible supported self-management, as well as service organisation and delivery.
The Macmillan HORIZONS Programme sets out to improve the lives of people affected by cancer by building understanding of life after a cancer diagnosis and providing a depth of evidence not available through other research. The Macmillan HORIZONS Programme will:
- Use a longitudinal cohort approach involving representative groups of people with a range of cancers and different combinations of: treatment, prognoses, likelihood of recurrence, short term and late effects, co-morbidities, lifestyle and socio-economic profiles.
- Reveal how the consequences of cancer treatment affect people's lives, how consequences are managed in everyday life, including lifestyle changes, role of self-efficacy (confidence to self-manage illness), social networks, burden of treatment, and experiences of those living with co-morbid conditions, how this changes with time and what influences this.
- Lead the way in understanding complex survivorship experiences and health outcomes from the perspective of thousands of people living with and beyond cancer and how this changes for different groups in the population and across the life-course.
- Provide novel and detailed evidence to inform the national and global movement to transform care for cancer survivors.